Status
Ongoing
Project acroniem
PROMsPREMs
With the financial support of Kom op tegen Kanker (Stand up to Cancer), the Belgian Cancer Registry (BCR) started an implementation study for structurally embedding the measurement and monitoring of Patient-Reported Outcome Measures (PROMs) and Patient-Reported Experience Measures (PREMs) in patients diagnosed with lung or rectal cancer. This research project is a collaboration between the Vlaams Instituut voor Kwaliteit van Zorg (VIKZ) (Flemish Institute for Quality of Care), the Leuven Institute for Healthcare Policy (LIHP)/KU Leuven, the Vlaams Patientsplatform vzw (VPP) (Flemish Patient Platform) and numerous clinical experts and participating hospitals across Flanders.
There is little doubt about the relevance of PROMs and PREMs in Flanders’ current healthcare landscape. However, PROMs and PREMs are currently not structurally measured in Flanders and are not yet embedded in daily practice. There is thus a lack of knowledge about the implementation of PROMs and PREMs and the barriers that need to be overcome at the micro level, more specifically in the direct treatment relationship between the patient and the healthcare provider.
This implementation research is conducted using an embedded multiple case study design in which both quantitative and qualitative methods (mixed methods) are used to study the characteristics, context and process of an intervention.
Using systematic research on validated, reliable, relevant and applicable PROMs and PREMs for lung and rectal cancer, a set of PROMs and PREMs will be selected and measured in around ten (test) hospitals. The main responsibility of BCR in this will be to develop the necessary measurement protocols and centralise the collected PROM and PREM data in the participating hospitals.
The results of this study will initially lead to an implementation plan for the further roll-out of the structural measurement and follow-up of PROMs and PREMs in Flemish hospitals. In addition, the results will be published for a first longitudinal follow-up of PROMs and PREMs in patients diagnosed with lung or rectal cancer. These results will help improve the quality of care in hospitals and may also influence the direct relationship between the patient and the interdisciplinary treatment team.
There is little doubt about the relevance of PROMs and PREMs in Flanders’ current healthcare landscape. However, PROMs and PREMs are currently not structurally measured in Flanders and are not yet embedded in daily practice. There is thus a lack of knowledge about the implementation of PROMs and PREMs and the barriers that need to be overcome at the micro level, more specifically in the direct treatment relationship between the patient and the healthcare provider.
This implementation research is conducted using an embedded multiple case study design in which both quantitative and qualitative methods (mixed methods) are used to study the characteristics, context and process of an intervention.
Using systematic research on validated, reliable, relevant and applicable PROMs and PREMs for lung and rectal cancer, a set of PROMs and PREMs will be selected and measured in around ten (test) hospitals. The main responsibility of BCR in this will be to develop the necessary measurement protocols and centralise the collected PROM and PREM data in the participating hospitals.
The results of this study will initially lead to an implementation plan for the further roll-out of the structural measurement and follow-up of PROMs and PREMs in Flemish hospitals. In addition, the results will be published for a first longitudinal follow-up of PROMs and PREMs in patients diagnosed with lung or rectal cancer. These results will help improve the quality of care in hospitals and may also influence the direct relationship between the patient and the interdisciplinary treatment team.
Quality of life