Data request

Afbeelding data op aanvraag

The Belgian Cancer Registry (BCR) receives numerous requests for information or specific data every year. Due to the sensitive nature of these data, BCR has to apply strict standards and procedures when releasing them. Regardless of whether the information or specific data are intended for the general public, public authorities, researchers, media or pharmaceutical companies, they must always comply with the General Data Protection Regulation (GDPR) and other national legislation.

Good to know in advance

The BCR metadata catalogues for cancer registration and screening (breast, cervix, colon) give you an overview of the information available within BCR.

Would you like to receive anonymized data (aggregated figures in graph or tabular form) from BCR, such as the incidence for a particular tumour type? Then consult our publications and drawing module first. 

Do you have a specific question that cannot be answered through our publications or sign module? Then you will find more information below about receiving a specific dataset.

How does it work? 
 

  1. You are a non-profit organisation (e.g. a university or hospital) requesting:

    • Anonymized data

      • Anonymized data are data that cannot in any way be traced back to an individual patient.
      • Please send your request to info@kankerregister.org

       

    • Pseudonymized data
      • Pseudonymized data are data at the individual level, for example data per patient or tumour.
      • This data is made available only to doctoral students, postdoctoral researchers, physicians in training, medical specialists or healthcare providers.
      • Download this form, fill it out and send it to externalresearchers@kankerregister.org.

     

  2. You are a profit organisation requesting data:
    If you are a for-profit organisation, please use the BCR data request form for for-profit organisations to send your request to info@kankerregister.org. By analogy with other cancer registries in Europe, BCR applies a reduced fee for making data available to for-profit organisations. Additional information on this procedure can be found in the BCR Code for data requests of for-profit organisations.