Status
Ongoing
Project acroniem
PLE
Introduction
Every year, an average of 520 paediatric patients (children and adolescents) are diagnosed with cancer. Their chances of survival are increasing thanks to faster diagnosis and more advanced treatment methods. Despite this positive news, many children and adolescents face several side effects after their cancer treatment that can greatly affect their quality of life, such as heart disease, reproductive disorders, obesity and so on.
Objective
In this registration project, acute and late side effects of cancer treatment in children and adolescents are mapped through data registration. The resulting information is used to improve understanding of late side effects, identify unknown side effects and develop scientific guidelines for prevention. It has been possible to register data from paediatric patients (0–19 years at diagnosis) in the project database since September 2017.
Financial support and partners
This registration project is an initiative of the paediatric haemato-oncology centres and is co-coordinated by the Belgian Society of Paediatric Haematology Oncology (BSPHO). Since the start of the project, financial support has been provided by Kom op tegen Kanker (Stand up to Cancer), Stichting tegen Kanker (Foundation against Cancer), Kinderkankerfonds (Children’s Cancer Fund) and Kick Cancer.
Contact
For more information about this registration project, contact paedlateeffects@kankerregister.org
Every year, an average of 520 paediatric patients (children and adolescents) are diagnosed with cancer. Their chances of survival are increasing thanks to faster diagnosis and more advanced treatment methods. Despite this positive news, many children and adolescents face several side effects after their cancer treatment that can greatly affect their quality of life, such as heart disease, reproductive disorders, obesity and so on.
Objective
In this registration project, acute and late side effects of cancer treatment in children and adolescents are mapped through data registration. The resulting information is used to improve understanding of late side effects, identify unknown side effects and develop scientific guidelines for prevention. It has been possible to register data from paediatric patients (0–19 years at diagnosis) in the project database since September 2017.
Financial support and partners
This registration project is an initiative of the paediatric haemato-oncology centres and is co-coordinated by the Belgian Society of Paediatric Haematology Oncology (BSPHO). Since the start of the project, financial support has been provided by Kom op tegen Kanker (Stand up to Cancer), Stichting tegen Kanker (Foundation against Cancer), Kinderkankerfonds (Children’s Cancer Fund) and Kick Cancer.
Contact
For more information about this registration project, contact paedlateeffects@kankerregister.org
